Im so happy that you got this kind of response finally . I hope it all goes the way you need it to go . I was at the drs yesterday only to be told the dr left on an er emergency and so I have to go back in two wks to up my supply , so for now out of pocket again !!! Not a nice feeling at all yeah I feel like a bar code too . talk to you soon so happy for you and nate .

Well...she definitely took some time to respond to you...which is GOOD! Sometimes we just have to extremely direct and in their face before they do anything! Sad..but true.

Jada's high time of the day is usually midmorning. And her breakfast shot is what really seems to affect those numbers. Her insulin to carb ratio is 1:10 at breakfast as compared to 1:35 at other meal times. Her liver just seems to spill an extra amount of sugar in the mornings (its called the dawn effect). We also try to have her wait at least 10 minutes after her shot before she eats her breakfast...that helps a ton.

I know you use NPH and I never have..so it does make things different. I've loved having Jada on Lantus...it doesn't peak....and we can pretty flexible with her eating.

Hang in there....you are doing fabulous with Nate. I can't imagine how you are feeling after all you've been through in the last couple of weeks. Lots of hugs and prayers to you!

Maybe you can just try and email Beth when you need something. It can't hurt to try right?
Also, good for you for getting their attention. Sometimes you just need to remind them that they can't treat people like numbers.
Hang in there... today is a better day :)

Good for you, Laura! Glad you are feeling better about it. I have a few ideas on things you could try to help the situation. Nothing major- just ideas. It's too long for a post, though. If you're interested, let me know- email, text or call anytime!!

I like that she made an effort...even though she didn't have much help to suggest. It is no fun to yoyo up and down, J was a very grumpy baby when he was on NPH. (Although...it could have been the fact that he was two at the time.:)

I'm glad you got a response. Keep pecking at them...hopefully they will wake up to the fact that Nate needs more care then their typical endo patient.

Thinking of you! I know it is so hard. I know.

Hi,
So glad you got a response from them! They are beginning to hear you. I think that's progress and it must feel good to tell them how you feel.

The numbers game.. ahhhhh.... my gal is 7 and is on Novolog as her bolus and Lantus at night time. I do appreciate the Lantus in her life, I think it provides a steady stream for her as background 'music' so to speak.

I hope you get to have one CDE and care team and that they hear you. I think this is progress so far.

Hoping you get through this rough patch and have some smooth sailing soon,
Penny

What a great note from a CDE :) We have one CDE that we email back and forth with and when we go to the Endo, we always request to see her before we leave if she's not our CDE when we get there. Usually if she sees our name on the schedule, then she will wiggle her way in ;) I love having the contact with ONE person instead of 5 different people calling me with pump setting changes.

Also, a book you may want to consider buying - "Pumping Insulin". We got it from another D-friend when Kacey was in the pump process and it's a GREAT manual!

Nate looks like he did well with the pod :) Good luck as you journey forward. You're gonna LOVE the pump!!

I know this is old but I just want to say that I love Beth! She has been so helpful, and believe me, some of them have not. I don't know why they don't assign the CDE's a caseload. It felt like for the first couple months I was calling every few days and having to re-explain everything that had happened over the last week. It makes no sense.