Tuesday, March 2, 2010
Pumping, Good Grief & HOPE
Pumping.
Well, we did it. Nate is now officially on the OmniPod Insulin pump. Yea Nate!
He wore the the OmniPod all weekend filled with saline so that I could get comfortable bolusing for all his meals and he could get used to wearing the device. Personally, I think we both did great!
Yesterday we met Jessica and family downtown at CMC to get this pumping started. Nate and Liam both tolerated their site changes and Jessica and I both passed the pump test with flying colors. Can I just say 1 more time how awesome it is to be going through this with Jessica and Liam? AWESOME.
Good Grief.
I decided to place Nate's pod on his bum and cover it with IV3000. Unfortunately, the major blow out that he has after dinner required a bio-hazard suit and a site change! Good Grief! So, lesson learned - - - Wait for bum sites until after potty training or invest in a lot more IV3000. After the blow out I moved the pod to his arm and he is doing quite well with it there.
All in all Day 1 went pretty well (except for the bio-hazard incident). Nate's basal rate is set at 0.15 units from 12a-12a so he experienced some highs yesterday but no ketones. We noted the high times and will make the necessary modifications today.
I stayed up most of the night to check his bg and watch him breathe. He was high at midnight so I made a correction, he was in good range at 3:00 AM but was low by 6:00 AM so we definitely have some tweaking to do. We will get there. One day at a time.
Hope!
I am hoping that pumping makes things better for Nate. I am hoping that we made the right decision. I am hoping that this will help Nate live a very long life. Most of all I am hoping for a cure!
Well, we did it. Nate is now officially on the OmniPod Insulin pump. Yea Nate!
He wore the the OmniPod all weekend filled with saline so that I could get comfortable bolusing for all his meals and he could get used to wearing the device. Personally, I think we both did great!
Yesterday we met Jessica and family downtown at CMC to get this pumping started. Nate and Liam both tolerated their site changes and Jessica and I both passed the pump test with flying colors. Can I just say 1 more time how awesome it is to be going through this with Jessica and Liam? AWESOME.
I decided to place Nate's pod on his bum and cover it with IV3000. Unfortunately, the major blow out that he has after dinner required a bio-hazard suit and a site change! Good Grief! So, lesson learned - - - Wait for bum sites until after potty training or invest in a lot more IV3000. After the blow out I moved the pod to his arm and he is doing quite well with it there.
All in all Day 1 went pretty well (except for the bio-hazard incident). Nate's basal rate is set at 0.15 units from 12a-12a so he experienced some highs yesterday but no ketones. We noted the high times and will make the necessary modifications today.
I stayed up most of the night to check his bg and watch him breathe. He was high at midnight so I made a correction, he was in good range at 3:00 AM but was low by 6:00 AM so we definitely have some tweaking to do. We will get there. One day at a time.
Hope!
I am hoping that pumping makes things better for Nate. I am hoping that we made the right decision. I am hoping that this will help Nate live a very long life. Most of all I am hoping for a cure!
Emma and Sophie are also hoping for a cure for their sweet baby brother!
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9 comments:
YAY!!!!!! So glad that day 1 went so smoothly (except for the bio-hazard blow-out) haha
I have often been tempted to move Jacobs site to his bum now that he is potty trained, only NOW I worry he will pull it off when he is trying to get his undies up and down... LOL Oh well.
YEAH!!!!!!!!!!!!! The blowout...blech! Love your Hope Hands :) So happy your and Jessica have found each other. The boy are CUTIE PIES!!! One day at a time, one setting at a time...one day you'll wake up and **POOF** it's all good :)
For a minute, anyway...
I like how you put "hope" on the Pod. Sounds like a pretty great start! Good for you!
You rocked it lady! Great job! Isn't it nice to be able to tweak, a little here and a little there. There is no better feeling than having your baby dialed in! (Even if it only lasts for a couple weeks.:)
Good luck. I am OVERJOYED that you have Jessica to take this journey with. What a blessing!
I too, LOVED that you wrote hope on his pod. It is such a powerful word...it tears me up everytime I read it.
Great post. I am so interested about this journey with the OmniPod. You are off to a great start. So glad you have someone along for the ride. That's the silver lining, if there is even one, in this all. That we meet so many great people we might have not otherwise known. Please keep us updated how he is doing with the pump.
Congrats on the pump start. Although it's not a cure it should make your life more simple and give Nate better control.
Yay for the pump!
Boo to poop!
So glad things are going well! I hope you get some adjustments in and are albe to sleep and rest.
Happy for you all! :)
YEAH!! I am so happy for you guys..
So glad things are going so far so good.. when Mattie starts on hers, I will have to get the in's and out's of this thing.. your a pro!!
That pic of Nate crying... so cute and so sad.. I loved that picture!! Sorry for the blow out, and good observation to wait til he is potty trained!!
I don't know why this post made me cry... It's hard to watch the boys go through this. But I don't think that's it. I am so proud of both of them for being so brave and wonderful. And I am so proud of us for getting through this. I feel SO blessed to have met you.
And it couldn't have been more fitting to do this on the day of hope.
:)