She really is a rock star! Love her and Love you! Praying for the steps to come.

Sophie is a trooper, just like her mama! Praying for better days ahead for this sweetie!

Sophie IS a rock star! Seriously, what that sweet child has to go through...and the fact that she probably does not even know what "good" feels like just breaks my heart. I will be praying that this medicine is the answer to get her feeling better.

You are a rock star mom and you handle it all with such grace. Much love to you, Laura!

Beautiful little girl! What a fighter! Wonder where she gets that??? Praying this is the answer to brighter days! Love you!

Thank you for including us in this journey, I hope that this medication is an answer minus any of the side effects. Take care, and yes she IS a rockstar :)

No doubt about it! Sophie IS amazing and fantastic and beautiful and perfect! And so is her mama! Love to you and your sweet girl!

Love how you join the kids in their sufferings...fasting with her...I remember, too, you saying you wore the omnipod or dex (or both?) ... such compassion you have for your little ones.

She is due for a miracle too. Let's add her to the prayer lists. Love you dear sweet friend!

what a beautiful brave girl! and you are an incredible Mom!

Laura, my heart just breaks for your little Sophie. She is so young to deal with so much! My sister has uc and I have crohns. We have both been on remicade since 2007 and it has been amazing for both of us. My sister delayed starting it for a long time because we were nervous about the side effects. However, once she started her health improved soooo dramatically. When I was running out of options a short time later I was less nervous to start it because of her success. Neither of us have had any bad side effects. We are actually both pregnant with the second baby we have each had while on the medicine and have had very healthy pregnancies and babies. I hope your sweet Sophie will have similar results and can get back to being a healthy little girl who remembers what it feels like to feel good!

Oh sweet Soph! I am sorry to hear the diagnosis, but glad you have found it, for it means you can start treatment. She is such a brave girl, and you are such a brave Mom.

Super Sweet Sophie is just amazing!!! I so pray that even if it sucks at least you got answers that will help Sophie feel GOOD again!! We will definitely be praying for a cure for CD too!! You ROCK, Laura and so do your amazing kiddos!! Love ya!!!

Sophie is seriously the most gorgeous little girl, inside and out! I'm glad you've gotten answers and there's a path forward for improving her health and well-being. Wish it didn't come with so much fear, but trust in God to take care of what you can't and that fear will ease a bit. Give her lots of hugs and remember that you have a huge community of people pulling for all of you!

Wow..I am amazed at Sophie! What a trooper, and so sweet. Glad the scope is over and hope you all figure out what's happening so she can feel better soon!
Thinking of you all~
Jessica

Amanda: Sorry to hijack this thread, but we have a very similar health situation and I wanted to contact you via your blog, but didn't see how to email or subscribe to your blog. Can you contact me via mine? Thanks!

Laura, I'm so sorry for all you and sweet Sophie are having to go through. I think you are right when you say, "Sophie never complains but we have determined that although she thinks she feels ok she has most likely forgotten what good feels like. We need to change that." That is just heartbreaking. Reminds me of kids before they are diagnosed with T1D and then once they start receiving insulin, they feel SO much better.

I'll be praying this drug is just what she needs with NONE of the scary side effects. How encouraging to read Amanda's comment about her and her sister being on this same drug with success!

There's something so sad about seeing those words in black and white. Oh, my friend. I'm so proud of how strong you have been in managing both of these amazing kids.

Sweet Sophie is a superstar to the highest degree.

And so is her mommy.

Go Super Sophie! It never ceases to amaze me how our children cope with medical adversity, very humbling.

She is a reflection of your parenting and love, sweet Laura.

Information and clarification will only help you and Sophie's Dr.'s treat her, and treat her well.

Being scared is just a sign you love and adore your daughter . . . you will make the right decision for her, I just know it :)

Im hoping and praying the accurate diagnosis brings the promise of the right treatment and eases the symptoms and agony (for you both!) ((Hugs))

My sister was dx with Crohn's at age 8, after almost a full year of mostly minimal symptoms. I think it was 1980 or so. She was on Prednisone, flare ups every 18 months or so till high school. She will be 40 this August, had 3 uneventful pregnancies, was off all medication for more than 10 years, has had 2 bowel resections, and started Remicade about 3 years ago, I think. She tells me she can feel the difference before & after the infusion.
I was dx'd with Crohn's also, at 18, just after graduation & little over 6 months of abdominal symptons & almost daily diarrhea. I am 44 now, 2 successful pregnancies, 2 bowel resections, and still on Pentasa & 6-mp.
Sophie will do fine, especially with a mother like you to care for her!! Hoping & praying that Remicade is your answer & that Sophie feels better soon.