We had so much fun with Tressa taking our family photos this year! The wind was blowing 40-50 MPH and that wind brought in a cold front! Nothing could stop her from getting these pics!! She never stops taking pictures and just got the most fantastic shots!! We just love them and are so pleased to share them with our friends and family!

Nate began Dexcoming in 2010 at the age of 2 years old - It wasn't FDA approved for children yet but I was instantly in love.  



You can read about Nate's Dexcom trial here or you can click the Dexcom tab at the top for more information.  It was nice that Nate was so young when we began our Dexcom journey because he couldn't tell me NO at the time.  It quickly became just another poke in his world every 7 days.  We were very fortunate that at the time our insurance covered (we were on COBRA at the time) the Dexcom 7 and the sensors.  Unfortunately, once we lost COBRA we were on our own for the cost of the sensors which were about $350 per month.  



We have always been blessed by the DOC (Diabetes Online Community) -- we have been gifted sensors and traded other diabetes supplies for the sensors also.  Shhh . . . don't tell anyone but D Moms are the BEST and we all help each other out with supplies!!  We have never gone without sensors!! 

In 2012 Dexcom released the latest and greatest Dexcom product, the G4 and I could not wait to get my hands on that awesome little thing.  






Unfortunately, Nate is on Medicaid and although we are very fortunate to have it, sadly it does not cover a CGM for Nate.  They think it is not a medical necessity -- I disagree completely but that's another post for another time!  I won't lie -- I was a little jealous seeing all of my friends in the DOC posting pictures of their kiddos with the new technology!  Suddenly, the old Dexcom 7 that I had been on love with for the last few years seemed like an antique and quickly lost its luster.  (Now, how I miss its durability and super strong charging port!)

Fast forward to summer of 2013 --- Nate's dad called and told me he had a friend that wanted to GIVE us a G4.  Say what??  I think I cried.  --- I probably cried . . . I always cry.  

We received the new system in August of 2013 just in time for Nate to start kindergarten.  I was overcome with appreciation and happiness!  The gentleman that gave it to us probably has NO idea just how much it meant to me.  It was such a relief to be able to keep Nate safe while attending school!  



Then fast forward again to December of 2013 and suddenly I was in moderate panic mode!  Our receiver stopped working!  The little port that you plug the charger into had broken loose and was lodged inside the receiver.  We had no idea what had happened!  I called his teacher and no one had dropped it --- nothing --- it just broke!  It was crazy!  I was not in full blown panic mode because I figured I would just call Dexcom and they would replace it with the warranty.  WOW!  WRONG! Because we did not purchase the Dexcom system they would not honor the warranty.  Full BLOWN panic mode! 

Nate's dad called his friend that purchased it and after a lot of back and forth between all of them Dexcom decided to replace it.  In the meantime an amazing D mom had sent me their old receiver since theirs had just been replaced by insurance.  WOW!  

Fast forward again and the same thing happens.  For no reason the port just breaks.  Seriously?  Another amazing D Moms sends us their spare receiver.  I have the most amazing friends --- I am very much aware of this!  

Repeat that song and dance 2 more times.  We have had 4 receivers break for NO REASON.  I know this sounds highly suspect but it is so true.  Nate rarely wears the actual receiver otherwise I would maybe understand it breaking because he IS a rough and tumble little boy!!  But at school his teachers wear it on a lanyard around their necks which is where I wear it also when he is with me and when at home the G4 picks him up all over the house so we just leave it on the kitchen counter.   SO WTH DEXCOM??  

Here are a few posts I found in a FB group from others experiencing the same problem:

* Grrr the phone keeps saying cgm connection error. Fearing a broken charge port I plugged Dex into the computer and it showed the charging icon, so thankfully not that. Wish my 14 year old was home!
So, I guess it is nice to know we are not alone BUT REALLY, DEXCOM?  This is NOT an inexpensive piece of medical equipment.  In fact, it is really a VERY expensive piece of medical equipment that people rely on daily.  

In one FB group a few people tried to repair the receiver so of course, Ian gave it a shot on 2 of them but had no luck!!  

There were pictures along with the post but I do not want to violate that person's privacy -- here are the directions:

"If ever you've broken a USB port in a Dexcom Receiver - and if you haven't yet, you will - here is how to take one apart with a dremel and a makeshift router table. A new 50 cent USB micro female connector, some careful soldering, and you're on your way again." 

Here are some of the pics of G4 that he posted and some pictures of Ian trying the repair:






I would like to point out that none of the broken ports were Nightscout related and after we lost the last receiver and were down to 1 receiver I stopped using Nightscout for fear that we would break our last one.  That was a good thought but unfortunately it broke anyway.  #LAME  

The last one broke last Friday night and again I was in full panic mode.  Those that don't live with T1 cannot possibly understand how important Nate's CGM is to me.  I couldn't sleep - I was so upset so I decided to start searching for affordable alternatives (because sadly buying one new is NOT in my budget).  I found one for sale online for $200 (in Hong Kong - #weird) so I texted Nate's dad and asked if he would split the cost with me.  He didn't respond right away but when I woke up for the 3AM check I noticed he had texted me back during the night and reminded me that he still had the one that Dexcom had replaced last December!  OMG!   Happy tears again!!!  I totally forgot he had that one!! So now we have a brand new one but it has no warranty.

So, for real we are now on our last receiver and I am going to continue the uphill battle of fighting Medicaid for them to cover the Dexcom G4 and the sensors!  In the mean time I am terrified of charging this receiver for fear the port will break.  And honestly, as a mom with a son with T1 and a daughter with Crohn's disease it's not like I need one more damn thing to worry about!!  

I sent the last broken receiver back to Dexcom yesterday with a letter.  I am confident that they won't replace it but I am asking them to at least look at the issue and if nothing else use it to help improve the product!  

I've been watching the calendar and watching this day creep up for weeks now.  And for weeks I have been planning a very upbeat blog post to tell everyone how wonderful Nate and I are and how we have come so far that I rarely even let diabetes slow us down anymore.  Which is mostly true but man . . . . the last few weeks have kicked my rear.  Diabetes is not cooperating no matter what I do.

He's high.

or

He's low.

He's 44 double arrow down at school and about to pass out, feeling dizzy, he's rushed to the nurses office.

I make the smallest of changes .05 less basal to be exact and he's high --- so, so high.  Nearly 400 at school.

There has not been one 'good day' in weeks.  WEEKS people.  Diabetes is being a major asshole and I am exhausted and feel terrible for how terrible Nate must be feeling.  I honestly don't remember ever having so many peaks and valleys since his diagnosis --- 5 YEARS AGO.

I stole this pic from Alexis --- I heart it!!

So, even though I thought for sure I was going to blog about the rainbows and unicorns -- I'm just not feeling it.  Although I rarely cry over Nate's diagnosis or diabetes anymore last week I had a major meltdown.  After 7 nights of no sleep and just fighting the numbers I did it --- I broke down and cried.
It had been a while.

Did it help?  Not really but sometimes it just needs to happen.




As I sit here this morning trying to wrap up this post that was supposed to be upbeat and reassure everyone that after 5 years I am totally fine with Nate's diagnosis and diabetes it has become clear that I am not always fine with it.  Some days are fine.  Some days are not.  I don't dwell on it but I do allow myself to feel it, be sad about it and even very occasionally melt down but I can no longer live there.  That is not healthy for any of is in this family.  One day last week I wanted to just throw my hands up and say -- that's it!  I'm done!!  But that isn't an option!  I know the phrase "what doesn't kill you makes you stronger" is so overplayed (Thanks for that, Kelly Clarkson) but it is true.  I will get it all figured out and be stronger for it.  There will be a few weeks of calm, maybe even dare I say a few months of calm before the next storm hits and I will enjoy the calm, I will embrace the calm and I will LOVE the calm.  PLEASE bring on the calm!!



The only thing that is consistent with Type 1 Diabetes is that it is never consistent.
I know this.  This will pass and we will be fine.

All that really matters is that Nate is fine. He is wonderful and he is so brave.  I don't even know who Nate would be today without diabetes.  He's had it for so much longer than he hasn't.  I don't know who either of us would be.  We have both changed in so many ways over the past 5 years.  He has become big, strong and brave and well, I have become old, tired and mostly grumpy (that's a post for another day --- The Side Effects of Type 1 on D Moms).



I am the only one in my world that knows what today is --- I don't think anyone else realizes.  Is it like that for all families?  Nate was too young to remember as were the girls.  His dad doesn't know the date and I'm pretty sure no one else does either except for the other D moms out there that had a child diagnosed on this day too.  It was the worst day of my life and I remember every horrifying moment of it like it was yesterday.  The very thought of that day 5 years ago has me crying now.  UGH!  Ok, so now I have had 2 diabetes meltdowns this year.  That's really not too bad!!

To read about Nate's diagnosis -- click here.

Please read below for the symptoms of Type 1 Diabetes which is often misdiagnosed as a virus or the flu then watch the attached video and share the information.  You could save a life!!

From the JDRF website:

Symptoms of Type 1 Diabetes

Today it has been 5 years since Nate's diagnosis.

I am thankful I listened to my gut and took him in and would not leave until I had answers.  I am thankful for the community of other families that live with type 1 diabetes that have supported us and have become our family.  I am thankful that I have been given the opportunity to help other families and I am thankful that I am able to educate on Type 1 daily and hope that I can be as much help to others as they have been to me.

I am thankful for Nate and all of the brave people living with Type 1 Diabetes.

Brave Miniature Humans!

FIVE.  WOW!

Because blogging every 6 months or so seems to be my new pattern I'm going to go ahead and hammer one out . . . 

But really - - - I'm so super excited about something and I want to share it with everyone!  

My friend, Hallie at The Princess and the Pump and I have been following a grass roots movement for a while, we both joined the FB group, CGM in the Cloud a few months ago and stealthly read every post and looked at every photo before deciding to jump on board (FINALLY!!) and set up our own Nightscout systems.   What is Nightscout also known as CGM in the Cloud?  Well, it's probably way more technical than I can explain so I will refer you to the site and the set up instructions after I try to tell you my version . . . 

Our Dexcom G4 CGM (continuous glucose monitor) receiver is now plugged into an Android Moto G telephone.  There is an awesome and amazing and magical app on the Moto G that takes the Dexcom information and sends it to a magical cloud and that magical cloud sends the data to my very real iPhone, iMac and iPad.  I love magic!  My iPhone is connected to my Pebble SmartWatch via bluetooth.  Some really smart person that developed all of the magic listed above also created a magical app for the Pebble which gets the data from the iPhone and displays it on my watch!!  Did I already say that I love magic?  

Ok, I know it's not really magic but like I said I will leave all the techy details to the amazing parents that developed this fantastic tool.  Here is a copy and paste from the CGM in the Cloud page on Facebook:

Nightscout has given Nate just the freedom that he needs at just the right time!  He's SIX now and going into 1st grade (I know --- whaaaaat?).  He likes to roam the 'hood, hang with the neighborhood kiddos and play outside with his friends (without mom hovering like a crazy person).

I'm also loving the freedom it's given me!  These pictures below are of me out on my 1st run while leaving Nate at home with an older neighborhood friend and Emma Leigh!  It was fantastic.  They all felt like they were getting a little bit of freedom and honestly I really needed that run!  I know there are running apps for the Pebble but 1) I really like my Nike watch and B) I didn't want to have to switch between Pebble faces to see Nate's number and my running stats.  I'm perfectly aware that I looked like a big dork --- I don't care!



Photos from Nightscout/CGM in the Cloud:




I also wanted to include this video that Emma, Nate and I made yesterday about how we carry our Diabetes supplies around --- including the OmniPod PDM and the Nightscout set up.  The last time we made a video about our "D" Bag was in April of 2011 ---- you can watch that one HERE and you should watch it because it's so funny and cute and Nate and the girls were so teeny tiny and adorable!

So, here is the new video:


You have to watch the video to see how we are going to roll out Nightscout at school --- if you have any questions . . .shoot me an email at houstonwehaveaproblemblog@gmail.com or message me on Facebook: https://www.facebook.com/PinkDrinkTexas

And as of right now this video will not load on YouTube or on Blogger so I may throw my iMac and iPhone out the window at any moment.  Hopefully, by the time this posts everything will be loaded.  If not, well I'll go with Plan B.  I don't have a Plan B yet but I'll figure it out!

It loaded!!  YIPPPPEEEEE!!!

Thanks for stopping by and please go check out Nightscout because #WeAreNotWaiting.

I've received a couple of emails this weekend from people commenting about different posts on HWHAP.  I love getting feedback from readers and then getting to know them via email or Facebook.  It makes it all so much more real.  Anyway, having received several emails this weekend it made me want to dust off the blog and bring it up to date.  I will start here:

We had family pictures taken before Christmas so I thought I would share a few of them here.  The kiddos have all gotten so big!!  This year Nate will be 6, Sophie will be 8 and Emma & Lexi turn 10!!











Photo credit to Simply Indelible ---- Angela did such a great job taking quick shots and capturing the precocious personalities of all of our littles.  


Keep Calm and Christmas On?