Friday, February 17, 2017
Dexcom Denied
#Insurance #denied again. We ended up paying cash because #Dexcom is a #MedicalNecessity. It has literally saved #SuperNate's life and the peace of mind is priceless. This small little transmitter (x2) is $600. It blows my mind that #Medicaid#StarKids #MDCPTexas doesn't think Nate's life is worth it. I do. ❤️
Wednesday, February 15, 2017
Medical Supplies - Full Time Job
I seriously wish I could be paid by the hour for the time I spend advocating for medical supplies for my children. I normally like to keep things upbeat and chill on FB but today has been a beating, this week has been a beating ...
Children with lifelong chronic illnesses should not have to fight for the medically necessary equipment that keeps them alive. No one should!
How hard is it?
And I fear things are only going to get worse all the way around --- fighting for their medical needs and their federally protected rights is exhausting.
Today I am tired. More than just sleepy. Just tired of the bullshit. And let's be clear ---- it is all bullshit.
Friday, February 10, 2017
Friday Night Fun with Diabetes and Crohns
From Friday, February 10th on Facebook: Rocking #Friday night at the #HivoryHome #Hivory2017 #Humira#Omnipod #CrohnsDisease #TypeOneDiabetes #Freestyle #SuperNate#SophieDoodleDoo #MomMomMommyMom #HoustonWeHaveAProblem#Blog #OurAutoimmuneLife
I do love this crazy life ours!
I do love this crazy life ours!
Wednesday, February 8, 2017
Plexus Perks - Working from Home - Endo Day
Still my favorite boy today! #BoyMom #DMom #TypeOneDiabetes --- Endo Day for this #cuteness! #A1C #Diabetes #SuperNate #Hivory2017#workathomemom #WAHM
So fortunate to be able to spend time w this guy and have the #timefreedom to take him to all of his appointments.
The above is taken from my Instagram post on February 8th. I really do love being able to work from home and spend time with my littles when they need me. Nate's quarterly endocrinologist appointment is not how I would choose to spend time with my boy but we make the best out of what we have been given and usually end up having such a great day together!
Blessed by Plexus. Blessed to be a Boy Mom! -- Blessed!
❤️
Thursday, February 2, 2017
Sophie Turns 11
She's stubborn, messy, a brat at times, clumsy, loud, and silly but in my eyes she's perfect! She's taught me how to love fiercely and unconditionally.
Let's be honest, there are days that she tests me from the moment she gets up until the moment I'm screaming for her to go to sleep but that's the me in her. She's strong, passionate, brave, and beautiful.
She will be the friend that is there --- no questions asked. I call it the 'bury the body' friend. She's true to herself and fights for what she wants. Amazing little warrior. ❤️
❤️
Though she be but little, she is fierce.
I love seeing these pictures that demonstrate every aspect of her personality. ---> Uploaded them here!
And yes, she chose to go 4-wheeling with Ian today instead of a girls day w me. I love that she loves him so! ❤️
❤️
The Doodle is eleven today. Best day ever.
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